Topical Conference Call Series Archive

Engaging Families and Youth from Diverse Communities in Partnership: Implications for State Title V/CSHCN Programs

April 23, 2002
(Download transcript of call in MSWord or WordPerfect)

Featured Speakers

Connie Wells, Executive Director Florida Institute on Family Involvement

Nairobi Shellow, Executive Director, Youth Organizers United (YOU)

Leslie Carroll, Family Consultant, CSHCN Program, Community and Family Health, Washington Department of Health


Toni Fisher, M.A., Senior Policy Associate, Maternal and Child Health Projects National Center for Cultural Competence

Diana Denboba, Public Health Analyst, Division of Services for Children with Special Health Care Needs, Maternal and Child Health Bureau, Health Resources and Services Administration, Department of Health & Human Services

Conference Call Description & Objective

This conference call is designed to raise awareness of the importance of engaging youth and families from diverse cultural and linguistic backgrounds in Title V/CSHCN programs including:

  • family and youth participation in all program phases including planning, implementation and evaluation;
  • strategies to enhance family and youth participation in Title V/CSHCN program activities; and
  • potential outcomes for state Children with Special Health Care Needs (CSHCN) programs as a result of family member and youth involvement.

The objective of the conference call is to provide a forum for discussion of three organization's experiences with engaging families and youth from diverse backgrounds in program activities.

Resource Materials Bibliography

Implications for State Title V/CSHCN Programs

We regret that we are unable to provide the full-text of the following resource materials on our Web site. This bibliography is provided as a reference source to review at your leisure. These articles and video support the content of the conference call.

Institute for Health & Disability. (1998). Children with Special Health Care Needs and Their Families: Building on Cultural Strengths. University of Minnesota.

Institute for Health Disability. (1998). Children with Special Health Care Needs. Minneapolis, MN.

Joe, J. (1997). American Indian Children with Disabilities: The Impact of Culture on Health and Education Services. Family, Systems and Health. New York.

Lynch, E. and Hanson, M., ed. (1999). Developing Cross-Cultural Competence: A Guide for Working with Children and Their Families.

National Fathers Network. (1996). Equal Partners: African American Fathers and Systems of Health Care (video & workbook). National Maternal & Child Health Clearinghouse, VA (by way of Circle Solutions 888-434-4624 or 703-821-8955).

NY State Department of Health. Partners in Health: Self-Help Mutual Support for Culturally Diverse Families of Children and Youth with Special Health Needs. Albany, NY.

Roberts, R., Rule, S. and Innocenti, M. (1998). Strengthening the Family-Professional Partnership in Services for Young Children.